Living Extremophile: Life with Invisible Disability

(Note: I began writing this piece on the dangers of diagnoses and legitimacy  about a year ago, and never got back to it. So the reeling phase is pretty well past!  Also, early in December of 2019, the geneticist I saw diagnosed me with Hypermobile Ehlers-Danlos Syndrome. So new reeling process in progress.

On yet another sick day due to URI (upper respiratory infection) exposure, I’ve been tossing around an idea about Western medicine. At first I thought that Western medicine’s conception of germs and microbes had completely divorced any concept of personal responsibility from illness. But I was wrong. It just allowed it to be misplaced.